When I finally understood Mental Health

 

man in blue and brown plaid dress shirt touching his hair
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I have always been a person who appreciates being fully aware and in full control in my functions. I hate speaking on this, but as I am having another “episode” (for lack of any other word), I am going to be frank.
I am oddly intelligent. I know… what kind of person says that? It hit me later on in life that people did not memorise number plates on the back of a car, or remember almost every thing that has happened to them since the age of two. I have a brilliant memory. I can tell you if my neighbour or people who live down the street or even people who live in my suburb is at the store I’m about to enter because I see their number plate which I have seen once or twice parked at my store. I thought this was normal. Now, you could read this and say automatically that I am autistic or have something similar along those lines. I don’t take that as an insult. I know many amazing autistic people.
I really do not fit hardly any of the autistic checklists. I’ve checked. In fact I remember taking just a “for fun” quiz about “how autistic are you” type test and it said I was negative 10%. I am literally the opposite of autistic and yet I have some strange nuances.

Why I am I writing this? Over 6 years ago my health went down – physical and mental. I know I got angrier and more depressed, thoughts I knew that were not normal for me. It wasn’t just that, I suffered from insomnia, tremors, extra migraines, loss of muscle control etc. Now I cannot fully rule out some conditions – I am unable to get an MRI because of my pacemaker (which is not MRI safe) but there are definitely some conditions that my doctors would like to rule out or confirm. I have been dropping things lately, slurring my words, having difficulty lifting my legs – I know I’m not okay. These are physical but I notice a drop in my mental health too. Don’t get me wrong, I can write better during these days (I am writing academic essays and fictional stories all while going through this).
However as doctors were very clear that they had their suspicions but never could diagnose let alone prescribe me medicine because they cannot do an MRI I am here, alone.

Most people who know me know I am the most competent, in control, reliable people you will ever meet. However, Mental health, REAL MENTAL HEALTH is something that you cannot control. I have my own perception of my emotions and know something is not right.

That’s what I want to talk about. My mother notices I am not myself, but not only can she not understand but she also criticises me not thinking clearly -because she cannot understand why I am thinking and questioning certain things.

The fact is, with mental health, if your brain betrays you, you are questioning if your relationships are solid. You question if your emotions are trustworthy.

Sometimes you question those that you trust most so that you can be sure of what you are feeling. This tires out other people. This causes the “burden effect” which is the worst. Every person who is deeply aware of mental health knows that once you feel like a burden, the suicidal thoughts can appear. This is something I try to resist with all my effort. I have two children and I refuse to go down that road but I battle it.
How difficult is this? I know today that a couple of times I emotionally lost perspective of what angered me and what upset me as a parent. I know my daughter got a few extra words of lecturing than necessary about something that was so stupid. AN hour later I came into her room and apologised for making a big deal out of nothing… but what hurts most is how quickly she forgives me because she deserves better and shouldn’t forgive me that fast. I am not abusive. Yet I still feel guilty over making a big deal out of something that was so not a big deal. My children mean more to me than mistakes. I hate that sometimes for me to deal with my health I have to put them on an ipad because I cannot take them anywhere. The guilt of this doesn’t help.

What worries me is that I know I’m not seeing things in a proper perspective and I have emotions that are not comparable with the situation. I also have no diagnosis as it coincides with physical health too. I hate not being able to grip, or having to concentrate to coordinate my moves. It’s difficult when you can’t put a name to the physical or mental health but have to learn to adjust. I can only pray that my children who are extremely resilient and loving towards me will take their compassion and experience and be able to use it in the future. I also share that I am scared. I am not sure if I will feel better or worse in the next few days – I hope better but my hope has been shattered before and am scared that I am getting worse.

If you have mental health issues (and physical health issues) please get help. See your local GP and be honest – but if you are finding you can’t trust your perception and mental health please see your GP, but if that’s not enough call the hotlines.

US: 1800 273 8255

AU: 13 11 14

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What I can control…

alone bed bedroom blur
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Well, I have hit reality today that I am suffering from my yearly struggle with the weather (here in Australia) turning from Spring into Summer. To be honest I REALLY don’t do well with the weather change. I’ll be fine when the heat evens out but right now it goes from rain to hot as hell and then cold rain again. My body just doesn’t adjust to such inconsistency.

However I am on a “getting fit” kick and I was frustrated with my health setback. I remembered that even though I was in extreme pain, that my doctor told me that for Continue reading “What I can control…”

Beginning Today

achievement activity adolescent arms
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Today is the day I start my journey to becoming more fit and the weight that I want to be.
It hit me that I have done this but given up because I don’t see the progress I have made. I was looking at other weight-loss stories and I saw a woman who said she was glad she took pictures because she didn’t think she had made progress even though she had lost 100 pounds. The pictures showed how obvious it was that she had lost weight but in her head she felt like she hadn’t made progress.
This is why I fully believe that as long as you don’t have any physical health problems Continue reading “Beginning Today”

No More Excuses

red and white stop road signage
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So Many of you know that I have had illness for most of my life.
I am pleased to announce that I have been given the “ALL CLEAR” by my doctor last week. Although, My doctor told me I’m not allowed contact sports which was a big “duh” for me (ha ha).
The problem with being so tired and ill for so long is that I am no longer “fit” (to put it nicely), and all though I’m not obese, I am definitely not in shape.
I have noticed ever since I have recovered from the “spleen-attack”, and the spleen has shrunk by a third – I have recovered more energy than I have ever had before.
I do have minor surgeries in the coming years and tests that involve being put to sleep every year but I am amazed at how much physical resilience I have now and know it would only get better if I was in shape.
I have no more physical reasons why I cannot workout and I’ve been told that as long as I take care of my liver (which includes getting in shape) I could live as long as anyone else despite the physical stress my body has gone through. So I am motivated!

What’s the problem? Now it’s mental. I have been so used to being “too tired” or struggling on the brink of death (little did I realize how sick I was all this time), that my brain is trying to give me more excuses. So I’m here to say that YES! I am doing this, and I plan to work through all those excuses and replacing them with more positive and encouraging thoughts to get through this. So WATCH THIS SPACE – I will be monitoring my progress – I’m holding myself accountable with telling you all my plans. I have to back up what I say!!
(P.S. Okay – my only physical excuse is that I have had a cold for the last week but I’m finally starting to kick that and get more active again – heh heh).

A very personal post

Me waking up in the hospital in March after being told the odds were against me (with filter)

⚠️ warning: personal post ahead:

Today (as long as nothing changes) should be my last procedure of the year. The last 18 months has consisted of 7CTs, 3 (going on 4) procedures, 9 (going on 10) Cannulas, 3 local anaesthetics, 2 (going on 3) general anaesthetics, 2 ambulance rides, 3 catheters, countless tears, many prayers, and one seriously considered plan to escape the hospital. Even though today is considered “super safe” I still have a lot of emotion going into it. I know some have it better and some have it worse… but this year has been rough for me (and my family). In 4 days I turn 37 with doctors at the beginning of the year doubting I would live to see it. Now I’m forecast to live many more years (God willing). So as much as I hate having to do another procedure, I am thankful that despite how upsetting this year has been I still get to be a mother, wife, daughter, sister, aunt and friend. Hope 37 treats me better… can’t wait to be over the last side effects for the year in a couple of days and no more needles for at least a few months 👍👍

Rare

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So I have been quiet lately because I have been quite upset thinking that I may need to go through another procedure. I have been undergoing test after test (I have another one next week) but thankfully the doctors have had a chat and decided that I would probably be best to be left alone.

I have a test scheduled next Thursday and my doctor mentioned that the results would be back in time for “the 19th”. I said “What happens on the 19th?” He says “oh we (and he mentioned some of the best doctors I know) have a fortnightly meeting…  (silence…) where we meet and discuss patients (silence….) like you…. (silence…) you probably have felt your years burning”.
Well… let just say I’m not sure where I am supposed to be in life as my life is constantly interrupted with my health surprises and abnormalities but I definitely feel like a super rare and valuable Pokemon collector card when it comes to doctors.

I nearly shared the story of having an ultrasound on the entry sight right after a procedure and the ultrasound technician said she needed a radiologist in the room to double check they have the scans they needed. As the radiologist came in he asked what I had gone through … I said “Spleenic Artery Aneurysm coiling”… he said “no, you must be mistaken what did you have?” so I said it again… Then he said “no, you must mean brain aneurysm or heart aneurysm?” before I could respond he said “WAIT!! You’re that girl!! I heard about you!!” suddenly there was 50 questions coming my way “How do you feel, can you feel the coiling? Do you know it’s there?” I couldn’t get a word in…

The funny thing is… I have felt quite frustrated in my life about all this health stuff… and yet… I have a little giggle to myself that if I am here for nothing else… at least I can be a medical “rarity”. I usually make it a mission to have the very serious doctors with a smile on their face or in laughter by the time I leave their room.

Today, I was quite relieved when told I did not need another procedure despite the findings (of yet again new internal strange things) – and my specialist who has seen me for at least 6 years said: “as usual, it’s always a pleasure to speak with you”. and I smiled and answered cheekily “I know”.

Hey… I got to be confident about something in life – if nothing else… The doctors who like a challenge – love me and talk about me often. That’s better than feeling sorry for yourself and not knowing why the heck you are still alive.

P.S. did a 5k walk on Sunday – with all the new energy I have from my 1/3 of my spleen dying. Have been walking a minimum of 5K every day and determined to feel healthy again no matter what is happening – also – it rained THE WHOLE TIME…
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Looking for something rare like rare Pokemon cards? Find them here

Keep getting back up

sunglasses

So, an embarrassing thing happened to me at school pick up yesterday. Fortunately most parents had gone home already so there weren’t many witnesses.
I fell… and not gracefully – full on fell on my face – that I have included pictures of the sunglasses sitting on my face that protected my eye as I fell.
Ugh.

First… I’ll state the obvious… falling sucks.

Thankfully – nothing super serious happened. The sunglasses protected my eye. My palm is bruised badly (but no broken wrist).
I have had a lot on my mind lately – paying bills, a personal disappointment, and another test that I have to be checked into hospital for tomorrow. So my mind was elsewhere and I was distracting myself (according to my last post).

So as I was home yesterday evening – sipping on wine, relaxing the nerves after the fall, I couldn’t help but think about how sorry I felt for myself. Memories of falls I have had in the past (thanks to a weak ankle) went through my head.
I couldn’t help but think of a particular saying that goes through my head…

“It’s not about how many times you fall down, but how many times you get back up”

And boy – have I had to get back up A LOT.

How many times have you had to pick yourself up?

 

If you are like me and need protection from falling, here are some climbing harnesses that may help 😉